Last in a series. Read part one. Previously, I shared part of my conversation with disability advocates Lily Sander, a Muscular Dystrophy Association (MDA) Ambassador and person with Charcot-Marie-Tooth disease (CMT) type 1E and hereditary neuropathy with liability to pressure palsies; and Erin…
Discussion
September is CMT Awareness Month, and advocacy organizations are running campaigns to highlight the diverse lived experiences of people with Charcot-Marie-Tooth disease (CMT). According to the Hereditary Neuropathy Foundation (HNF) — whose motto is “CureCMT” — the theme for this year’s awareness month is #ThisIsCMT. The goal, the…
Becoming educated and informed about Charcot-Marie-Tooth disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CMT journey.
There is no cure for CMT yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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